Some key elements of the medical management of children with intersex/Differences of Sex Development (DSD) have changed since the late 1990’s as affected adults and their parents have spoken out about the unwanted physical and emotional effects of the standard of care. The 2006 Chicago Consensus Statement has recognized the trauma induced by a lack of informed consent in medical decision-making and has called for user- and family-centered care, delivered by a multidisciplinary team of providers. Despite the increasing international attention for medico-legal and human rights issues in relation to intersex/DSD over the past decade, there is a fundamental lack of knowledge about the nature of these issues in Belgium. This is the first study to systematically explore and juxtapose the different concerns held by important stakeholder groups in the country.
Acknowledgements: This project is funded by the Flemish Minister of Equality Policies and the federal state secretary of Equality.